He was born with harlequin ichthyosis, sometimes called fetal ichthyosis or fetal ichthyosis. His skin is growing 10 times quicker than that of a typical child as a result of this disease, which puts him in imminent danger of infection.
Evan is afflicted with the most severe phase and one of the many kinds of this illness. He must thus bathe at least twice daily to prevent any potential infections. His skin must be cleaned and a specific lotion must be applied to the whole surface of his body each day by his parents.
Sunburn or dehydration are additional risks. Evan has to stay out of the sun as much as possible and drink lots of water.
Dede Fasciano, Evan’s mother, was forced to quit her job as a result in order to care for her son, who requires particular care.
When others hear his story, they might assume that Evan is a troubled kid who is constantly sad and self-conscious about his appearance, but this is not the case.
The boy is very upbeat, and friendly, and has many friends with whom he can play and pass his free time.
Watch the video below to hear Evan’s entire story: